The debate on rare diseases: A look at media response

Authors

  • Antonio Bañón Hernández University of Almería (Spain).
  • Josep Solves Almela CEU Cardenal Herrera University in Valencia (Spain).

DOI:

https://doi.org/10.7203/metode.6.7188

Keywords:

critical discourse analysis, rare diseases, means of communication, argumentation, orphan drugs

Abstract

Rare diseases (RDs) are thosethat affect fewer than five people in every 10,000. There are around 7,000 RDs, they are difficult to diagnose and very few have a treatment. This article explores how the media report on the arguments and counter-arguments regarding the access to drugs for these pathologies, with critical discourse analysis for the case of Duchenne muscular dystrophy. We concluded that, in times of crisis, the debate polarises around economic arguments (the price of drugs), reinforced by doubts about their healing effectiveness.

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Author Biographies

Antonio Bañón Hernández, University of Almería (Spain).

Professor of Philology at the University of Almería (Spain), research coordinator of the group Communication and Society (CySOC) and member of the Observatory for Rare Diseases (OBSER), part of the Spanish Federation for Rare Diseases (FEDER).

Josep Solves Almela, CEU Cardenal Herrera University in Valencia (Spain).

Professor of Communication at the CEU Cardenal Herrera University in Valencia (Spain). He is director of the Observatory for Rare Diseases (OBSER), part of the Spanish Federation for Rare Diseases (FEDER). 

References

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Published

2016-04-15

How to Cite

Bañón Hernández, A., & Solves Almela, J. (2016). The debate on rare diseases: A look at media response. Metode Science Studies Journal, (6), 209–213. https://doi.org/10.7203/metode.6.7188
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Issue

Science grid: The public understanding of science (2016)

Section

Communicating health. Medical outreach efforts in the media

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